Someone recently asked me if I had ever written about how we adapted to Lynn’s loss of function in his hands. I haven’t, but it’s a topic that might be helpful to some, so here goes. Lynn’s loss of the use of his hands gradually progressed over time, I’m guessing maybe 3-4 years, with the […]
In the past month, I have been taken to the emergency room twice with severe abdominal pain and vomiting. Each time, they ruled out appendicitis (thank goodness), but obviously, something was wrong. At this point, they believe I have two locations in my intestines that are infected, which is causing the pain, so I’ve been
I Just Keep Going and Going and Going Read More »
About this time last week, I was experiencing discomfort in my abdomen. As the hours progressed, the pain got worse until, eventually, it was so intense that I was vomiting. Unable to sit up, I was lying on the floor moaning in pain with no access to help within reach. Fortunately, Lynn heard my moaning
What Resources are Available if I’m Not Around Anymore? Read More »
With Relapsing-Remitting MS (RRMS), Lynn would have an exacerbation that could last days or weeks, but he would return to “normal” at some point, and nothing much changed. With Secondary Progressive MS (SPMS), he stopped getting better. He happened to be in a clinical trial at the time he transitioned to SPMS so he was
Helpful Resources for Supplies, Equipment or Information Read More »
I talked to a fellow caregiver this week about an event that occurred to him, and he commented, “Yeah, I’m just waiting for the next shoe to drop.” That comment struck home. I confess that I’m like that most of the time. Lynn, my husband and the person I provide care to accuses me of
Waiting for the Next Shoe to Drop Read More »
It’s been the talk for days. “Have you heard? We might get a foot of snow.” The prediction was for it to start before sunrise on Friday, then changed to 10 a.m., and then to 1 p.m. Two days before the snow was predicted, lines at the grocery store were wrapped around and down aisles.
I had a scare this week, thinking that I was about to experience the joy of food poisoning. As I was giving Lynn his bath, I started feeling really nauseous. Then my stomach started burning and feeling crampy, and I started sweating—all the tell-tale signs of food poisoning when you’ve recently spent hours sampling leftover
I Can’t Just Get Sick Read More »
Christmas is now officially over, and it’s with mixed emotions that I say goodbye to it for another year. I love the Christmas holidays. I decorate everything in sight. Since we don’t go out often, we miss most of the festive sights so I bring it to us instead. I can’t outline the house in
We Survived Christmas, But Just Barely Read More »
I get a lot of offers to help; some sincere and others just being polite. What I have found is that people want to help, but they don’t know how, and realistically, many have their own problems and challenges, so they can’t help in a way that involves time or money. While I really could
No, I’m not talking about the “take no prisoners” rules, but instead, I am referring to rules associated with social engagements. This is the holiday season, and family gatherings and parties at work or at friends’ homes are cherished events and a great way to keep those social connections. However, participating can be challenging and
Rules of Engagement Read More »
I was listening to a Bible commentary today, and the commentator discussed how God takes us through trials in life that prepare us for events yet to come. He described how precious metals are often put into the fire for purification so that the impurities are removed, and the remaining metal is stronger and better
What do you see when you see me? Do you see what I’ve come to be? Do you see the mask I wear That hides the truth of all I bear? Do you see my strength, my skill My constant running all uphill? Do you see my desperate hope That with each change I still
What Do you See When You See Me? Read More »
