Commitment

Adapting to caregiving may mean changing your living room into a bedroom to accommodate a hospital bed and learning to rearrange your life to adapt to an entirely new lifestyle.

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I’m starting my “staycation” today. You know the kind; where you vacation at home so you can get things done that you never have time to do when you’re working. We normally vacation at the beach each year with our children but when the time came this year to pay off the rental, we realized that though we had some good times when we were there, for Lynn, most of the experience was exchanging one bedroom view for another with a lot of recovery time thrown in without access to all his special needs supplies (though it felt like I packed the house each time we went.) We decided the work involved in going and having to work around his special needs while there would not be offset enough by the short periods of time that we had available to enjoy time with the family. We enjoy having the kids around but often they were in another room or outside so we didn’t really have them around that much. So we canceled the condo at the beach (lost $3000 in canceling the date but in the long run we preferred the loss to going.)

At first, I thought about not taking any time off at all since I use my leave time fairly often to take him to appointments or to provide his care, but then realized it would be a great opportunity to get some things done around here, so now I’m really excited about it.

My main goal for this staycation is to clean out my garage so I can move items from the spare bedroom to the garage and move things from another bedroom to the spare room. All this moving around is in preparation for installing an exercise pool. An exercise pool, mind you, that I don’t want but one that Lynn has his heart set on getting.


Continue reading at: http://multiplesclerosis.net/caregiver/caregiver-perspective-commitment/

2 thoughts on “Commitment”

  1. My husband is a C2 Quad and when we went on vacation I came back more tired so we started doing “staycations”, AT first it really saddened me, but this is the 6th year and it is easier. I have got a lot done and I am going to paint the living room! Blessing to you and yours, Cheri

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