Hurricane Irene has moved on now, and we fared pretty well. We lost electricity at 2 p.m. on Saturday, and we still don’t have it back here at 5:30 p.m. on Sunday. Our yard is a mess, and we’ve lost everything in our refrigerator, but I think the freezer food, for the most part, is […]
Weathering the storm Read More »
I don’t know why, but I’m feeling blue. Maybe the atmospheric pressure is playing a role since we are waiting for the hurricane to roll in tomorrow night. I think it’s primarily due to a lack of sleep and trying to get away today. I worked till 10 last night, and then Lynn wanted to
I have the blues today Read More »
I’d never experienced an earthquake before, and it was a really eerie feeling to feel the air and ground moving around me. I was working at my desk, and Lynn was working in the back room at his computer when it started. At first, I thought it was dynamite being used to get rid of
Comfort in the Face of the Earthquake Read More »
I’ve discovered that buying things to make life easier for a caregiver can be expensive; however, with just a bit of creativity, you can have devices that work almost as well for a lot less (other than the time it takes to make them). Lynn has been a carpenter, is very creative, and has come
Necessity is the Mother of Invention Read More »
I’ve always loved to sleep. I don’t nap during the day, but if I had my preference, I would go to bed between 10 and 11 p.m. and not get up again till 9:00 a.m. A good night’s sleep for me is 9 hours. During that time, I might get up once to go to
Love/Hate Relationship with the Night Read More »
Ever felt like you just couldn’t take one more demand on your energy? I was like that last Monday night. We got home from vacation Saturday, and I stayed up till 3 a.m. putting things away. Sunday was much of the same, except it was catching up on things at home. Again I went to
I Just Can’t Deal With Another Thing. Read More »
We are on our last day of vacation, and as usual, I think everyone is looking forward to going home–although we have had a great time. There is no place like home, is there? For instance, yesterday, I helped Lynn take a shower in a regular shower stall. I put in the shower chair for
Triumphs and Disappointments Read More »
We are on vacation. It’s so nice to be away from home, with the sound of the beach in the background and our children around us, but unlike the days before MS, vacationing with MS is not a relaxing experience. First is packing to go. I had to pack his cool vest, his exercise equipment
Vacationing with MS Read More »
You will notice as I write these blogs that I always talk about “we”– “we were in the hospital,” and “we are learning to live with xxx.” I don’t mean to minimize that Lynn is the one with MS and he is the one who ultimately has to deal with the frustrations, pain, discomfort, and
Lynn’s son might have MS. He is still going through testing and if he has it, it’s very early in the disease process. Lynn’s father had MS, then Lynn, and now his son. When Lynn was first diagnosed we were told it was not a genetically driven condition but there might be a predisposition to
Like father like son Read More »
In late May 2011, Lynn became very sleepy. He was so tired he could hardly stay out of bed. I listened to his lungs, and they sounded very noisy in some areas and almost no movement in others. His home health nurse thought we should go to the ED, and finally, even he agreed. We
I am so excited. Lynn was able to type using both hands yesterday! He hasn’t been able to do that in months. He also tested whether he could hold a fishing rod, and he was not only able to hold it but also reel it in. He hasn’t been able to fish, which he dearly