Have you ever thought about how many choices you make in a day? Mine start before I open my eyes Wonder if Lynn will know I’m awake if I pretend to still be asleep. What time do I have to get up to be ready by xxx? Do I want to get up now or lie here? Those […]
In the early days of my journey as an MS Caregiver, Lynn would fall, or we would get into a situation that was difficult and we would look at each other and laugh. We coped with a lot of our hardships by laughing at how bizarre the situation would become as compared to
One night this week, just about bedtime, I became very nauseated and started feeling really lousy. It had the feel of when I’m about to have an allergic reaction to something. I have lots of food allergies, and I often find out about a new one through several hours of agony and being
911-Do you Do catheters? Read More »
For most of us, if we get a cut or scrape or even a deeper laceration, we start to heal immediately and in a few days or weeks, it’s much improved. The skin has miraculous healing powers. Immediately after a cut, the body clots the bleeding, sending white cells and special chemicals to the site
Oh, No. Is That a Skin Tear? Read More »
I think I can do whatever I set my mind and that my body and abilities will fall in line to ensure it happens. So, I strive to be the best manager, employee, mother, wife, caregiver, and friend. I want to take care of everyone’s needs, solve all their problems, and still have energy afterward
Reaching my Saturation Point – at least today Read More »
One of the greatest challenges of living with MS is how unpredictable each moment of your life becomes. I’ve shared that frustration before, but I keep coming back to it because it’s such a constant struggle. Adapting to it not only means being prepared for the unexpected and flexible but also being prepared to accept
Live in the Moment Read More »
On May 27, at 3:51 p.m., my daughter gave birth to a beautiful son, Elijah Gregory—Eli for short. I was fortunate enough to share in the experience with her and her husband, and at the moment of Eli’s birth, my daughter wept tears of joy, as did I. The decision to have a child was
The Blessings of Children Read More »
Have you seen that commercial that asks, “Where do you hurt when you have depression?” and the answer is, “Everywhere.”? That came on while I was helping do something this week for Lynn, and suddenly, I realized that maybe I had “misdiagnosed” his symptoms. Lynn started on Rebif about two months ago. Over the past
Are you the type of person who keeps a calendar and checks their watch several times daily? I am. Since I can remember, I have been a clock watcher. I always had a sense of what time it was and what day. Not that I was always punctual, but I always had my schedule somewhere
Time or Just One Continuous Move Forward? Read More »
Pressure. So much pressure. …but where does it come from? Me or “them?” This has been one of those weeks where I have felt I was under extreme pressure all week. The week started off with me getting up early on Monday for a conference call that wasn’t scheduled till Tuesday. I needed to get
Sometimes I Feel Like I will Explode Read More »
I’ve been thinking a lot lately about respite care. I was asked to participate on a committee to look at creating a voucher program in Virginia for caregivers to obtain a small amount of financial assistance so they could afford respite care. I think the idea is wonderful. So many of us need a break
Financial Support for Home Care Read More »
Do you remember when the person you care for was first diagnosed with MS? You might not have been around them at the time, but I remember it very well. Those were very confusing days. I was almost sure Lynn had MS. He didn’t want to talk about it or give the disease any power
I Don't Know What I Don't Know Read More »
