When I was a child, I loved working pencil and paper puzzles. You know the ones I’m talking about? There were dots, numbers, or letters on a page and as you connected the dots, a picture emerged. What I did not realize at the time was that doing those pictures was actually very educational. I […]
In 2010, I was going to work every day, and Lynn stayed home alone. At that time, he was still walking, though he would lose his balance frequently and fall. However, being the stubborn man he was, he chose not to use his rollator unless absolutely necessary (i.e., he was too tired or had too
The Day It all Changed Read More »
As I have been reading blogs written by other caregivers or MS patients, that joke that goes around, “How many xxx does it take to….” comes to mind. When Lynn was first diagnosed, I had a basic knowledge of MS and figured that he would have a neurologist to manage all his care, but what
How Many Specialists does it take to Treat One MS patient? Read More »
When I started blogging, I had no idea what I was doing. I had heard about blogging but since I don’t have a lot of free time, I had not read many blogs. Then, while Lynn was in the hospital, I was talking to a nurse whose husband also had MS, and we talked about
Family of bloggers Read More »
One of the readers of my blog shared that she had heard of a diet to help people with MS. She had a video of Terry Wahl talking about it. I was amazed as I watched the video that it was the exact diet that Lynn’s dietician has him on. He started this diet the
I’ve always disliked change. I like things to be predictable, and I like feeling in control. I want to know what I’m responsible for and be able to plan my immediate future with some degree of probability. I also like to finish jobs and cross them off my list. Change doesn’t come easy for me,
Too many changes in too short a time Read More »
Today is my Mom and Dad’s 59th wedding anniversary. When people comment about the sacrifice I’ve made to care for Lynn, I truly don’t understand why it seems so different. I practice now what I saw my parents demonstrate for each other and for us over and over again. Before I was born, my mom
Happy Anniversary Mom and Dad Read More »
I keep thinking about how this is a topic none of us talk about, but everyone has to face it at some point, so I decided to write about it. Warning: It may seem insensitive to some, but in reality, it’s one of the elephants in the room we don’t talk about. If you are
Privacy? You've got to be kidding….. Read More »
Lynn saw the hematologist this week to find out why his hemoglobin goes up and down. When we got the lab work back, his hemoglobin had dropped one point, which wasn’t that bad, actually. So then, why does he get so cold so often? The good news is that the doctor ruled out anything like
Not anemia? Guess it's MS… Read More »
Sometimes, I catch people looking at me in sympathy, and you can read in their eyes that the path I have chosen is too much of a sacrifice, but what they don’t seem to understand is that I did, in fact, choose this life. No, I did not go out and look for someone who
In sickness and in health…till death do us part Read More »
Just when you think things are getting better, they start rolling downhill again… Lynn’s dietician put him on a special MS diet to improve the absorption of nutrients and, more importantly, iron since he struggles with iron deficiency. He has to eat three cups of green leafy vegetables per day, three cups of vegetables high
What a roller coaster! Read More »
I have so much going through my mind today that I find my emotions on the surface for no real reason other than overload. We’re having friends over for dinner tonight. They are bringing the meat and I’m doing the vegetables. This is a couple we really enjoy being with and can be ourselves with