I often complain about how picky I think Lynn is. One of my greatest frustrations is how much effort it takes to get something right for him. It has to be “just so” before we can stop fiddling with whatever it is. I’ve always thought that it was just because he was picky […]
A Little to the Left Please Read More »
I’ve discovered that many people who have never been caregivers just don’t get what it really means to be a caregiver. They make many bad assumptions that sometimes cause us to hurt. I had an example of that this week. On Friday, I received an email from my former sister-in-law. She was “outraged” by something
Looking outside, I see some new orange and yellow colors where last week I saw green. There is a sporadic fluttering of leaves cascading in front of the window on their way to cover my yard. The air is crisp causing me to need to turn on the heat this morning so Lynn would not
My daughter approached me during our vacation and asked if I would be interested in speeding the day with her “escaping” from our caregiving responsibilities and just doing what we wanted to do. She knew I usually worked on the weekends but thought I should take a break and do something just for myself. She
So This is What a Day of Freedom Feels Like Read More »
I realized something this week. Somewhere in my subconscious, I seem to be waiting for all “this” to go away…to wake up one day and “everything” be back to normal. How odd is that? Lynn was diagnosed with MS in 2006. We were married in 1997. I knew well before his diagnosis that he had
When Is This Going to go Away? Read More »
For the first time in eight years, Lynn has been able to “swim” in the ocean. He was overjoyed at the experience (that grimace in the picture is only due to the wave splashing on his face; he was having a blast), and so were we. So even though Radical Mobility lied about sending us
Now This is What I Call Accessible Read More »
One of the ways we cope with Lynn’s condition is to deal with what we have “today” and not look too far ahead. That’s especially true for Lynn but not as much for me. My personal make-up requires that I have a sense of control over my life, so I ALWAYS look ahead and plan
Fear of What Tomorrow May Bring Read More »
Today is my birthday. I’m a grand ole 56 years young or old, depending on which joint is aching and how much sleep I have had. Usually, I do not pay much attention to birthdays. My children are grown, and no one is in the house, but Lynn and I have no way to buy
Happy Birthday to Me! Read More »
I had to make a choice this week about my own care that turned out well but according to the urgent care doctor I saw, was not very bright. Maybe so, but it was a calculated risk, and one that I felt was the right decision at the time and, as it turned out, was
Choices and Calculated Risk Read More »
I’m supposed to be at my eye appointment right now. Since I’m writing a blog instead, you are correct in assuming I didn’t make it there today. I really wanted to go get my eyes checked but even more, I really wanted new glasses. I wear progressive lenses in very inexpensive frames, and for the
Divine Intervention? Read More »
By far, one of the greatest frustrations I have as a caregiver is that I have no control over what I want to do and when I want to do it. I am sitting here so frustrated now that I can hardly think straight. Today is July 4, my day off. However, I actually planned
The Best Laid Plans…Oh, Forget It Read More »
I’m ashamed of how much I complain to Lynn about the things he asks me to do. If he calls me to cath him and it’s only been 40 minutes, I’ll say something like, “You’ve got to be kidding! You couldn’t possibly need to pee again this soon.” Today, I gripped because he now eats
See Me Through His Eyes Read More »
