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Home
About Me
- Formal Preparation
- Life Preparation
Compassion Ministry
- What is Compassion Ministry?
- Ministry Programs
Caregiving
Healthcare Systems
- The US Healthcare System
- Regulatory Oversight
Medical
- Providing Basic Care
- Advanced Care Topics
Mental Health
- Managing Behaviors
- Mental Health Disorders
Caregiver Perspective
Connections
- Learning and Strength
- Caregiver Connections

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Lung Disease

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Patient Education

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Rare Conditions

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Senior Living

Sharing Knowledge in Other Ways

Skin Conditions

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Trauma Injuries

Veterans

Visual Conditions

Alzheimer’s Research

https://onlinesemaglutide.org/glp-1-agonists-and-alzheimers/

AARP Family Caregiver’s Discussion Group

https://www.facebook.com/groups/aarpfamilycaregivers

American Heart Association

https://cpr.heart.org/

1-800-AHA-USA-1

Mesothelioma.Net

https://mesothelioma.net/mesothelioma/

1-800-692-8608

Fisher House

https://www.fisherhouse.org/

(888) 294-8560

Psych/Armor

https://psycharmor.org

1-858-755-3006

Patient Advocate Foundation

https://www.patientadvocate.org/

+1 (800) 532-5274

Cerebral Palsy Guidance

https://www.cerebralpalsyguidance.com/cerebral-palsy/treatment/

877-862-8594

Adaptive Equipment Caregiving Corner

https://adaptiveequipmentcorner.com/

The Caregiver’s Journey

https://thecaregiversjourney.com/

Caregiver Warrior with Susanne White

https://www.caregiverwarrior.com/

Susanne@caregiverwarrior.com

Reboot Recovery

https://rebootrecovery.com/

The Happy Healthy Caregiver

https://happyhealthycaregiver.com/

My Pivotal Point

https://mypivotalpoint.com/caregivingconsulting/

contact@mypivotalpoint.com

Dementia Darling

https://www.dementiadarling.com/

WillGather – Navigating the World with Your Aging Loved One

www.willgather.com

Happy Healthy Caregiver

www.happyhealthycaregiver.com

Grief Share Support Group

https://www.griefshare.org/

800-395-5755

Confessions of a Reluctant Caregiver

https://www.confessionsofareluctantcaregiver.com/resources

EDS Today

http://www.edstoday.org/

Young Survival Coalition

https://youngsurvival.org/

877-972-1011

Wigs for Kids

https://www.wigsforkids.org/

440-333-4433

Well Spouse Association

https://wellspouse.org/

732-577-8899

Virginia Lung Association

https://www.lung.org/about-us/local-associations/virginia.html

800-586-4872

United Ostomy Association

https://www.ostomy.org/

800-826-0826

United Mitochondrial Disease Foundation

https://www.umdf.org/

888-900-6486

United Cerebral Palsy

https://ucp.org/

866-827-1692

Ulman Foundation

https://ulmanfoundation.org/

888-393-3863

Tuberous Sclerosis Alliance

https://www.tscalliance.org/

800-225-6872

Triage Cancer

https://triagecancer.org/

424-258-4628

Tourette Syndrome Association, Inc.

https://tourette.org/

888-486-8738

Take Them A Meal

https://takethemameal.com/

800-915-7715

Susan G. Komen for the Cure

https://www.komen.org/support-resources/support/

877-465-6636

Survivorship A to Z: Information for Living with Cancer

https://www.survivorshipatoz.org/cancer/

212-586-5600

SuperSibs!

https://www.alexslemonade.org/campaign/supersibs

866-333-1213

Stupid Cancer

https://stupidcancer.org/

212-619-1040

Stroke and Heart Disease

https://www.stroke.org/

800-242-8721

Sjogren’s Syndrome Foundation

https://sjogrens.org/

301-530-4420

Sickle Cell Disease Association of America, Inc.

https://www.sicklecelldisease.org/

800-421-8453

The SAMFund

https://expectmiraclesfoundation.org/samfund/

617-938-3484

Ronald McDonald House Charities

https://rmhc.org/

630-623-7048

Rehab Spot

https://www.rehabspot.com/alcohol/who-alcoholism-affects/seniors/

877-648-4288

Rare Disease Parent Education Network

https://rarediseases.org/organizations/parent-education-network/

307-684-2277

Rare Caregivers

https://www.caregiving.org/rare/

301-718-8444

PTSD: National Center for PTSD

https://www.ptsd.va.gov/

800-698-2411

Prostate Cancer Foundation

https://www.pcf.org/

800-757-2873

Parkinson’s Foundation

https://www.parkinson.org/

800-473-4636

Parent Education Network

https://rarediseases.org/organizations/parent-education-network/

617-249-7300

Packard Center for ALS Research

https://packardcenter.org/

410-955-8635

Ovarian Cancer Research Alliance

https://ocrahope.org/patients/support-education/peer-support-woman-to-woman/

866-399-6262

Osteogenesis Imperfecta Foundation

https://oif.org/

301-947-0083

Oral Cancer Foundation

https://oralcancerfoundation.org/

949-723-4400

OncoLink.org

https://www.oncolink.org/

215-349-8895

Needy Meds

https://needymeds.org/

800-503-6897

National Stroke Association

https://www.stroke.org/

800-242-8721

National Sleep Foundation

https://www.sleepfoundation.org/

18334226875337

National Psoriasis Foundation

https://www.psoriasis.org/

800-723-9166

National Parkinson Foundation

https://www.parkinson.org/

800-473-4636

National Osteoporosis Foundation

https://www.bonehealthandosteoporosis.org/

800-231-4222

National Organization for Rare Disorders

https://rarediseases.org/

617-249-7300

National Multiple Sclerosis Society

https://www.nationalmssociety.org/

N/A

National Mental Health Association

https://www.mhanational.org/

703-684-7722

National LGBT Cancer Network

https://cancer-network.org/

212-675-2633

National Kidney Disease Education Program

https://www.niddk.nih.gov/health-information/community-health-outreach/information-clearinghouses/nkdep?dkrd=lgdmw0002

800-860-8747

National Kidney Foundation

https://www.kidney.org/

855-653-2273

National Institute of Neurological Disorders and Stroke

https://www.ninds.nih.gov/

800-352-9424

National Institute of Mental Health

https://www.nimh.nih.gov/health/topics/post-traumatic-stress-disorder-ptsd

866-615-6464

National Institutes of Health

https://search.nih.gov/search?affiliate=nih&page=1&query=heart+disease&utf8=%E2%9C%93

301-496-4000

National Institute of Arthritis and Musculoskeletal and Skin Diseases

https://www.niams.nih.gov/health-topics/arthritis

301-495-4484

National Hemophilia Foundation

https://www.bleeding.org/

212-328-3700

National Down Syndrome Society

https://ndss.org/

800-221-4602

National Domestic Violence Hotline

https://www.thehotline.org/

800-799-7233

National Diabetes Education Program

https://www.niddk.nih.gov/health-information/community-health-outreach/information-clearinghouses?dkrd=lgdmw0001

800-860-8747

National Coalition for Cancer Survivorship

https://canceradvocacy.org/

301-565-9771

National Children’s Cancer Society

https://thenccs.org/

314-241-1600

National Center for PTSD

https://ptsdinfo.org/

N/A

National Cancer Institute (NCI) at the National Institutes of Health

https://www.cancer.gov/about-cancer

800-422-6237

Myositis Association

https://www.myositis.org/

410-290-0937

Myasthenia Gravis Foundation of America

https://myasthenia.org/

800-541-5454

My Cancer Circle: Power of Community (powered by Lotsa Helping Hands)

https://mycancercircle.net/

800-813-4673

Muscular Dystrophy Campaign

https://www.musculardystrophyuk.org/

0800 652 6352

Muscular Dystrophy Association

https://www.mda.org/

800-572-1717

Multiplesclerosis.net

https://multiplesclerosis.net/

N/A

Multiple Sclerosis Foundation

https://msfocus.org/Home.aspx

800-225-6495

Multiple Sclerosis Association of America

https://mymsaa.org/

800-532-7667

Muhammad Ali Parkinson Center

https://www.barrowneuro.org/centers-programs/parkinson-disease-and-movement-disorders/

833-902-2970

Michael J. Fox Foundation

https://www.michaeljfox.org/

800-708-7644

Mesothelioma Web

https://www.mesotheliomaweb.org/

877-367-6376

Meal Train

https://www.mealtrain.com/

N/A

March of Dimes Birth Defects Foundation

https://www.marchofdimes.org/

914-428-7100

Lupus Foundation of America

https://www.lupus.org/

202-349-1155

Lung Cancer Center

https://www.lungcancercenter.com/

833-987-5669

Lung Cancer Alliance

https://go2.org/

800-298-2436

Locks of Love

https://locksoflove.org/

888-896-1588

LIVESTRONG Adolescents & Young Adults

https://livestrong.org/resources/young-adults-with-cancer/

855-220-7777

LIVESTRONG

https://livestrong.org/

855-220-7777

Leukemia & Lymphoma Society: Childhood Blood Cancer

http://www.lls.org/childhood-blood-cancer

800-955-4572

Leukemia & Lumphoma Society

https://www.lls.org/

800-955-4572

Let Them Hear Foundation

http://letthemhear.org/

650-462-3149

Kids Konnected

https://kidskonnected.org/

949-484-9092

Kidney Cancer Association

https://www.kidneycancer.org/

800-850-9132

Johns Hopkins Arthritis Center

https://www.hopkinsarthritis.org/

410-550-2044

Imerman Angels

https://imermanangels.org/

866-463-7626

I Had Cancer

https://www.ihadcancer.com/

212-994-5270

Huntington’s Disease

https://hdsa.org/

800-345-4372

Hospice Foundation of America

https://hospicefoundation.org/

800-854-3402

Help for Cancer Caregivers

https://www.helpforcancercaregivers.org/

Heart Disease/Stroke

https://www.heart.org/en/

800-242-8721

Group Loop – Online support for teens with cancer

http://www.cancersupportcommunity.org/group-loop

888-793-9355

Genetic and Rare Diseases (GARD) Information Center

http://rarediseases.info.nih.gov/GARD/

888-205-2311

Foundation Fighting Blindness

https://www.fightingblindness.org/

800-683-5555

Family Caregiver Alliance

https://www.caregiver.org/

800-445-8106

Epilepsy Foundation

https://www.epilepsy.com/

800-332-1000

Ehlers-Danlos Society

https://www.ehlers-danlos.com/

410-670-7577

Diabetes Research Foundation

https://www.breakthrought1d.org/

800-533-2873

Davis Phinney Foundation for Parkinson’s

https://davisphinneyfoundation.org/

866-358-0285

Cystic Fibrosis Foundation

https://www.cff.org/

800-344-4823

Critical Mass

https://youngsurvival.org/directory/general-cancer/critical-mass-the-young-adult-cancer-alliance

877-972-1011

Crohn’s & Colitis Foundation of America

https://www.crohnscolitisfoundation.org/about/contact-the-crohns-colitis-foundation

800-932-2423

Colorectal Cancer Alliance

https://colorectalcancer.org/

877-422-2030

Children’s Mitochondrial Disease Network

https://rarediseases.org/organizations/childrens-mitochondrial-disease-network/

617-249-7300

Children with Hair Loss

https://childrenwithhairloss.org/

734-379-4400

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

https://chadd.org/

866-200-8098

Cerebral Palsy Guide

https://www.cerebralpalsyguide.com/

855-220-1101

Centers for Disease Control and Prevention- Chronic Kidney Disease

https://nccd.cdc.gov/ckd/

800-232-4636

Centers for Disease Control and Prevention

https://www.cdc.gov/

800-232-4636

Centers for Disease Control and Prevention – Cancer

https://www.cdc.gov/cancer/

800-232-4636

Caring.com

https://www.caring.com/

800-558-0653

Caring Bridge

https://www.caringbridge.org/

651-452-7940

Caregivers Project/Osher Center for Integrative Medicine

http://www.osher.ucsf.edu/patient-care/self-care-resources/caregivers/

415-353-7700

Caregiver Support Services

https://www.caregiversupportservices.com/

866-201-6896

Caregiver Action Network

https://caregiveraction.org/

202-454-3970

Camp Mak-A-Dream

campdream.org

406-549-5987

Cancer.net

https://www.cancer.org/

800-227-2345

CancerCare for Kids

https://www.cancercare.org/tagged/children

800-813-4673

CancerCare

https://www.cancercare.org/

800‑813‑4673

Cancer Support Community

https://www.cancersupportcommunity.org/

888-793-9355

Cancer Research and Prevention Foundation

https://preventcancer.org/

800-227-2732

Cancer Financial Assistance Coalition

https://www.cancerfac.org/

Cancer and Careers

https://www.cancerandcareers.org/en

646-929-8032

Brain Trauma Foundation

https://braintrauma.org/

212-772-0608

Brain Line Military

https://www.brainline.org/

703-998-2020

Brain Injury Association of America

https://www.biausa.org/

703-761-0750

Birth Injury Justice Center

https://www.childbirthinjuries.com/

855-907-0214

Supporting a Loved One with Bipolar Disorder

https://nldetox.com/supporting-a-loved-one-with-bipolar-disorder/

866-932-0905

Asthma & Allergy Foundation of America

https://aafa.org/

800-727-8462

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD)

https://agmdhope.org/

781-275-1300

Arthritis Foundation

https://www.arthritis.org/

800-283-7800

American Tinnitus Association

https://www.ata.org/

800-634-8978

American Stroke Association

https://www.stroke.org/

800-242-8721

American Parkinson Disease Association

https://www.apdaparkinson.org/

800-223-2732

American Lung Association

https://www.lung.org/

800-586-4872

American Liver Foundation

www.liverfoundation.org

800-465-4837

American Kidney Fund

https://www.kidneyfund.org/

800-638-8299

American Heart Association

https://www.heart.org/

800-242-8721

American Foundation for AIDS Research

https://www.amfar.org/

212-806-1600

American Diabetes Association

https://www.diabetes.org/

800-342-2383

American Chronic Pain Association

www.theacpa.org

913-991-4740

American Cancer Society

https://www.cancer.org/

800-227-2345

American Brain Tumor Association

https://www.abta.org/

800-866-2282

American Autoimmune Related Diseases Association

https://autoimmune.org/

586-776-3900

Alzheimer’s Foundation of America

https://alzfdn.org/

866-232-8484

Alzheimer’s Association

https://www.alz.org/

800-272-3900

ALS Hope Foundation

https://www.alshf.org/

215-568-2426

ALS Association

https://www.als.org/

800-782-4747

Aging Care

https://www.agingcare.com/

888-552-1632

Addiction Center

https://www.addictioncenter.com/addiction/elderly/

855-670-3881

AARP Family Caregiving

https://www.aarp.org/caregiving/

888-687-2277

Get in touch

Donna Steigleder

Healthcare to Homecare, LLC

Email: dsteiglederH2H@gmail.com

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