We are on vacation. It’s so nice to be away from home, with the sound of the beach in the background and our children around us, but unlike the days before MS, vacationing with MS is not a relaxing experience. First is packing to go. I had to pack his cool vest, his exercise equipment […]
Vacationing with MS Read More »
You will notice as I write these blogs that I always talk about “we”– “we were in the hospital,” and “we are learning to live with xxx.” I don’t mean to minimize that Lynn is the one with MS and he is the one who ultimately has to deal with the frustrations, pain, discomfort, and
Lynn’s son might have MS. He is still going through testing and if he has it, it’s very early in the disease process. Lynn’s father had MS, then Lynn, and now his son. When Lynn was first diagnosed we were told it was not a genetically driven condition but there might be a predisposition to
Like father like son Read More »
In late May 2011, Lynn became very sleepy. He was so tired he could hardly stay out of bed. I listened to his lungs, and they sounded very noisy in some areas and almost no movement in others. His home health nurse thought we should go to the ED, and finally, even he agreed. We
I am so excited. Lynn was able to type using both hands yesterday! He hasn’t been able to do that in months. He also tested whether he could hold a fishing rod, and he was not only able to hold it but also reel it in. He hasn’t been able to fish, which he dearly
All my life, I have heard people say something was as “stiff as a board,” but it wasn’t until Lynn started struggling with MS that the phrase took on a literal meaning to me. I had also heard of spasticity, but I had no idea what that could mean. Early on, Lynn started struggling with
Ever make plans for the future that didn’t quite turn out as you had hoped? Yeah, who hasn’t. That’s how MS affects my life. We make plans, and then he has a new struggle to deal with, and our plans take a back seat. This is a second marriage for Lynn and me. When we
Wondering Where This Road Will Go Read More »
My spouse was diagnosed with MS in the fall of 2006. Since that time, the journey we have taken has been a whirlwind of change and adjustment. Realistically, I believe he had MS for many years before he was diagnosed. The signs were there–dragging foot, progressing to leg weakness, and then difficulty standing straight when he was tired.