I yell back, “Just a minute. Let me finish this sentence.” Then I try to recollect my thoughts and finish up whatever thought I was in the middle of (I work at my job from home using an internet connection) and see what he needs.
Hey Sweetie! Can you Come Here a Second? Read More »
Ever since Lynn almost had to go on a ventilator in May, in the back of my mind I wonder what to expect about the future. I seriously try to just look at what today holds for me but whenever plans need to be made, I can’t help but worry. I can’t share this with Lynn. If I do he thinks I’m being pessimistic and that I don’t think things will turn out well. It makes him depressed because he thinks I think he’s not going to get any better… so I can’t talk to him about my fears…but they are there.
Fear of the Future Read More »
First off, let me say that I would not wish MS on anyone. Nor do I believe that God gives people MS either as a blessing or a curse; MS, like all diseases, is a consequence of a fallen world and Adam and Eve’s free choice to disobey God.
Could MS Be a Blessing? Read More »
My husband, Lynn, began taking Ocrevus® (ocrelizumab), to treat his primary-progressive multiple sclerosis (PPMS) in March. As his caregiver, one of my responsibilities is to become familiar with his medicines and their risks.
Understanding Being Immunocompromised Read More »
The mysteries of MS always keep it interesting as I struggle to manage my husband’s medical care and assist him in maintaining an optimum quality of life with Primary Progressive MS (PPMS).
New Mysteries All the Time Read More »
Communication is a tricky process. When I make a statement, not only am I projecting what I think I intend to say, but I am also creating in my mind an image of how I think you will receive my message. I tell myself a story about our conversation before we ever have it. That means that by the time t
I try to stay optimistic about the future, but occasionally, an event reminds me of how tenuous life can be. One of those events happened recently with the passing of a fellow caregiver’s spouse.
Preparing for Loss Read More »
Prepare to become a caregiver. In 2015, research conducted by the American Association of Retired Persons (AARP) found that 43.5 million adults in the United States (approximately 29% of the adult population) had provided unpaid care to either a child or adult during that year.
Prepare to Become a Caregiver Read More »
It seems ironic but did you know that caring too much could harm you? There’s a fancy name for it called “compassion fatigue.” While compassion fatigue and burnout seem similar, they have significant differences.
Compassion Fatigue Read More »
As a caregiver, I want to help make my spouse’s life better. I want to help him find answers to his medical questions, assist him in doing the things he cannot do, and help him in whatever way I can.
Remember Whose Life You Are Living Read More »
Have you noticed how difficult it can be to have a sensitive conversation with another person without being misunderstood? Why is that?
Help with Difficult Conversations Read More »
Family Medical Leave Act Living with MS means a lifetime of unpredictability. You may feel perfectly fine when you go to bed, but sometime during the night, a significant front moves through the neighborhood, wreaking havoc on your body. Suddenly, getting out of bed to go to work would require the assistance of a powerhouse
Understanding How FMLA Can Help Read More »
