Osteogenesis Imperfecta Foundation
The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation’s mission is to improve the quality of life for people affected by OI through research, education, awareness, and mutual support. The OI Foundation began in 1970 by a small group of parents. At that time, they banded together to stimulate public and professional interest, support families and encourage research. Today, many of the people who serve on the Board of Directors and oversee the Foundation’s operations have OI themselves or are parents of children with OI.