One of the joys of having a progressive disease is that everything changes. Just as you adjust to one change, something happens and the “fix” you had in place is no longer working. As Lynn’s caregiver, I have not found his physician to be particularly helpful in warning me about things to come. If I ask about an issue, he will give me a prescription or a referral but he’s not much on home remedies or being proactive on warning on what I might encounter. Therefore, most solutions I come up with are things I stumble across and come up with myself and are not recommendations by doctors so you might want to talk to your doctor before you decide to do anything I mention here.
Now, my take on waste management…
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Wow, that brought back memories. Bill’s bowel problems weren’t as severe as Lynn’s, but we spent one night in the emergency room while they did some sort of procedure followed by two enemas. After that, he took a suppository and laxative regularly and drank more water. You can read all about this in my new memoir. http://www.abbiejohnsontaylor.com/memoir.htm