Providing Care-Multiple Sclerosis

Donna’s personal experience about being a caregiver for someone who has MS.

Understanding Immunosuppression

My husband, Lynn, began taking Ocrevus, to treat his Primary Progress Multiple Sclerosis (PPMS) in March. As his caregiver, one of my responsibilities is to become familiar with his medications and associated risks. While Ocrevus holds great promise for individuals who have PPMS, the impact of having continuous autoimmunity as a consideration in living his life is …

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Frustrations of Dealing with Limitations

Life at our house over the past month has been rather challenging.  My Mom was just diagnosed with ovarian cancer and lives about two-hundred miles away; so we have moved her and my Dad in with us while she goes through chemotherapy.  Lynn’s Mom has myasthenia gravis and suffers from extreme weakness all the time. …

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One Minute He's Hot; the Next He's Cold

The thermostat in my house is currently registering at 77o Fahrenheit. With all the activity I’ve been involved in today, I’m now sitting here melting at my computer. Meanwhile, Lynn alternates between being hot and cold but mainly stays cold. Before the days of MS, Lynn’s body temperature ran hot. It could be the middle …

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Is There Really Anything to Being On An MS Diet? We Think so

Early in discovering how to cope with MS symptoms, the nurse who works in Lynn’s neurologist’s office suggested that he might want to see a registered dietician. Lynn was feeling pretty rough all the time. He had no energy and more than that, he just felt bad. She shared that her husband had been seeing someone …

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Before Lynn's MS became so progressed, he was a carpenter and builder. He was in the beginning of building us a new home when the progression took over and he was unable to get beyond this point.

Arsenic, Mercury, and Lead – What do They Have to Do with MS?

If it’s one thing I have learned in caring for my spouse, it’s that in order to keep him healthy and functioning at his optimum level, I have to take a holistic approach to his care.  Taking MS drugs to prevent exacerbations helps prevent significant loss of function; however, if his body is not in the best shape …

Arsenic, Mercury, and Lead – What do They Have to Do with MS? Read More »

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